Episode 33: Endometriosis and Fertility: Finding Support Through a Facebook Group: Nancy’s Nook
March is Endometriosis Awareness Month. Endometriosis is a common condition that is often extremely painful, hard to diagnose, and can affect a woman’s fertility. In honor of this month, we’re rolling out a four-part series to bring awareness to this disease.
Being diagnosed with endometriosis is just the first step and now you’re left with more questions than answers. So, what do you do? You start searching on the internet and you’re flooded with information.
How could you possibly sort through it all? Well, there’s a special Facebook group called Nancy’s Nook that offers education around endometriosis to its 82,000 members. The group has grown to be such an important resource that even doctors refer patients to it.
In the final episode in our four-part series on endometriosis, we hear from Donna Laux, one of the key administrators for Nancy’s Nook, who shares how the group was created and how it’s helped thousands of women.
Guest: Donna Laux, Administrator for Nancy’s Nook
Host: Taylor Burbach, Patient Care Supervisor at Progyny
For more information, visit Progyny’s Podcast page and Nancy’s Nook.
To learn more about endometriosis, check out Progyny’s What is Endometriosis Infographic.
Be sure to follow us on Instagram, @ThisisInfertilityPodcast and use the #ThisisInfertility.
Have a question, comment, or want to share your story? Email us at thisisinfertility@progyny.com.
Host
As a patient care supervisor, Taylor helps oversee a team of dedicated patient care advocates. She is also recognized as a reproductive health advocate in her community as a Clue Ambassador. Prior to joining Progyny she organized two Darwin Day Colloquiums in 2014 and 2015 and helped organize the inaugural meeting of the Southeastern Evolutionary Perspectives Society. She recently discovered Krav Maga, which she practices in her free time.
Guest
Donna has a long history of working for endometriosis causes, which led to her position as the founding Program Director of the Center for Endometriosis Care in Atlanta. Currently semi-retired, she is an Admin for Nancy’s Nook, the premier Facebook group about endometriosis.
Donna lives in San Antonio with her husband Gill and their rescue dog Karski. She earned her BA at Ripon College and her MA at the University of Wisconsin-Milwaukee, in English. She has written and spoken millions of words over her career in support of women’s health. She’s written blog posts, research papers, newsletters, educational materials, speeches and thank you notes. She has spoken in large auditoriums and in church basements. Her message has always been one of empowerment and education: when we know, we can act.
Music From This Episode:
Artist: Meydn
Track: Please Wake Up
URL: http://freemusicarchive.org/music/Meydan/Havor/2-_Please_wake_up_1515
Artist: Nathaniel Wyvern
Track: Sanctuary Of The Sky Gods
URL: http://freemusicarchive.org/music/Nathaniel_Wyvern/Sanctuary_of_the__Sky_Gods/Nathaniel_Wyvern_-_Sanctuary_Of_The_Sky_Gods
Artist: TRG Banks
Track: Christmas Lights
URL: http://freemusicarchive.org/music/TRG_Banks/TRG_Banks_Christmas_Album/Christmas_lights
Artist: Lee Rosevere
Track: What Have You Done
URL: http://freemusicarchive.org/music/Lee_Rosevere/The_Big_Loop_-_FML_original_podcast_score/Lee_Rosevere_-_The_Big_Loop_-_FML_original_podcast_score_-_03_What_Have_You_Done
Track: Night Caves
URL: http://freemusicarchive.org/music/Lee_Rosevere/Music_for_Podcasts_4/Lee_Rosevere_-_Music_for_Podcasts_4_-_06_Night_Caves
Track: Making a Change
URL: http://freemusicarchive.org/music/Lee_Rosevere/Music_For_Podcasts_3/07_Making_A_Change
Artist: Steve Combs
Track: A Vital Piece of Music for All Your Soundtrack Needs
URL: http://freemusicarchive.org/music/Steve_Combs/Jaw/Steve_Combs_-_Jaw_-_01_A_Vital_Piece_of_Music_for_All_Your_Soundtrack_Needs
Track: Small Spaces
URL: http://freemusicarchive.org/music/Steve_Combs/Speaking_in_Spirals_1809/05_Small_Spaces